Who Am I, After the Cancer?

It was weird after I finally made it out after my cancer treatments were over.  It was like time stopped for me. For the past several months, I was confined to my home by my sickness. But when it was over, and I went out, I saw that life went on. My friends continued on with their lives;  meeting new people, getting new jobs, new homes, new relationships and changing their looks and such.  I guess I expected everything to be the same, but it wasn’t.  Even the old stores I used to go to changed their layout.  The mall changed. A gas station shut down. I felt like I was a stranger.  That made me feel uncomfortable.

I didn’t want the world around me to change.  I needed it to be the same:  Waiting there to welcome me back and invite me to jump right in, just where I left off.  I needed that to happen. My life with cancer made every moment of every day different and unpredictable.  From day to day, I never knew what was going to happen; how I was going to feel; which part of my body was going to change or fall away overnight. With that uncertainty, the one thing I had hoped to depend on to help me find my place again, was the “outside world.”  I needed to find that place outside of myself that was familiar.  But even the grass grows around those things when you’ve been gone for so long.  Then, it looks different. It’s all different.  I suppose..I’m different too.

That was hard:  Realizing that while I was dealing with my cancer, time continued to flow. Nothing was the way it was.  No one was the same.  I am not…the same.  Of course I’m not.  But then who am I?  Cancer had once defined me.  It ruled my day, had power over my body.  But now it’s gone.  So. If I’m not that person with cancer, and if I can’t be that person I was before the cancer, how do I find the person I’m supposed to be? Where do I belong when everything and everyone else in my life continued with the flow of time while I was stuck? Where do I fit in?  

 

March 23, 2009: I Want My LIfe Back

I don’t remember the last time I got full nights sleep.  I’m on so much med’s right now I don’t know if I’m dreaming.  Seems like the only way I can get to sleep is if I pass out from drinking, that can’t be healthy.  So I’ll keep taking the pills.
The hot flashes, the nights I wakes up soaked in sweat like I had just taken a shower.  The leg pain in my bones!!  The pain is the worse.  Please make it stop!  I want to rest!!

The doctor says it’s a side effect from the hormone blockers I have to take to prevent the cancer from coming back. It’s called Tamoxifen.  I need to take it every day for 5 years!!!!   

I also get an implant every 30 days to shut my ovaries down.  That poison is called Zoladex and the fricken needle looks like an ice pick!  I take these for 2 years!!!!  That gives me cramps and migraines. 
 
 Last night I slept a couple hours.  But I’m sure my mind was still awake because I didn’t feel rested at all.  I don’t feel tired, nor do I feel awake.  What the hell?

I wish I was a bird so I could just go anywhere I wanted.  Away from this place.  Away and out of my body.  I’m so tired of all this crap.  Tired of looking at myself in the mirror.  Seeing that ugly face looking back at me!  Tired of this mess of a house.  I’m tired of being hottt!!!  I just want my life back.  I want to feel normal again.  I want to do what I used to do, and just not worry about shit.

Yeah, I know I’m sounding low.  I guess occassional depression is a side effect too.  I’ll be okay….I got pill for that too.  I just want to be back to when I didn’t have to take a whole bunch of med’s and didn’t have to worry if the cancer was coming back.

Ughh.  I just want to fly away…I want my life back

November 9, 2008: Bottom of the Well

                                                                   It’s dark and damp
I’m sitting at the very bottom covered in mud
and wet with tears
My voice is weak
my hands shake
I reach up to grab the wall
I can’t see
I can’t feel
walls are slick there is nothing to grab
I cry…help
weak, soft but with determination…HELP
Nothing
sounds hollow
I sob, I cry out…HELP
No one hears, no one knows I’m here
No one knows I’m here
but I’m here
Why won’t someone look for me and pull me out of here?
I can’t do it alone….help
I can’t, I can’t
I cry, I’m alone
No one hears me
Please….please someone look for me
I don’t want to die at the bottom of this well
alone
No one knows I’m here
I’m here

September 20, 2008: Not a Champ

I’m  not as strong as I thought.  It’s hard for me to sleep because of the bone pain, hot flashes and the nausea in the morning.  I’m missing work.  I can’t eat.  I can’t move.  The new girl at work is annoying and makes me dizzy with all her talking and I can’t focus.

Please make this stop.  I’m tired.

 

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September 7, 2008: Second Round of Chemo

The last round of chemo kicked my ass.  And it was only my second one!  Damn.  I thought I was a warrior.  I thought I was gonna stand up to this thing, put up my dukes and beat the shit out of it.  Ha!  Guess I’m not as tough as I thought.
 
First of all, I had to go back to the doctor the day after chemo and for two days after that, to get shots to boost my white blood cells.  So, that along with the chemo, took it’s toll on this little body of mine.  The doctor keeps checking my kidneys and is concerned about the creatinine level being so high.  I keep getting bone pains, rashes, insomnia, fatigue, dizzy spells, loss of appetite, my nails are turning purple……oh yeah…loss of my beautiful hair….waaahh… Damn you!  I hate you cancer!
 
I just want to feel normal again.  I want to feel strong.  But now I worry what’s gonna happen next?  My next round is tomorrow!!!!  And I just started feeling better yesterday!  Damn.  I know this is the hard part and I’m gonna be a survivor, but…..this is really hard. Now I got to look forward to 5 hours of poison in my veins….. I would never, ever want any of my friends or family to have to experience this chemo shit.  It’s really, really hard.
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I hate you cancer

July 23, 2008: Sometimes I’m Not Ok

Sometimes I’m Not Ok

Sooner or later it all comes spilling out
Can’t hold in the fears….
push down the tears….. stuff my soul with everything I need to hide away…..away
Stand tall
Breathe deep
Push it down
Smile
Show how strong I am….
I am for my family…..
for my friends…..
for my students…..for hope
I am strong but then, it gets to the point
It’s quiet…
no ones watching, no one can hear me it hits me….
it’s a heavy burden to bear
It breaks
It spills
let go the fears .. .let out the tears.. .free my soul… let it go
Sometimes I’m not okay…..I’m not okay, I’m not okay

Chemo starts Monday